More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...

Jesy Nelson’s fiancé Zion Foster is opening up about their baby daughters' spinal muscular atrophy diagnosis. The former ...

"Monumental" is how Ashley E. Webb, MD Assistant Professor, Department of Pediatrics, Division of Child & Adolescent Neurology Neuromuscular Program Director, UTHealth, University of Texas Health ...

Jesy Nelson gave birth to her twin girls prematurely in May 2025 - now she's revealed her six-month-olds have been diagnosed with a life-changing illness ...

Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It can ...

British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.

LITTLE Mix star Jesy Nelson has revealed that her baby twins have been diagnosed with a severe form of Spinal Muscular Atrophy. In a heart-breaking Instagram post, the singer said her daughters could ...

SCHAUMBURG, Ill., Nov. 26, 2025 /PRNewswire/ -- Cure SMA, the leading nonprofit organization dedicated to supporting those impacted by spinal muscular atrophy (SMA), welcomes the FDA approval of ...

Lucian Neale was diagnosed with Spinal Muscular Atrophy (SMA) at six weeks old despite showing symptoms in his mother's womb. His mother Samantha Williams, from Crumlin near Pontypool, said she was ...

A new qualitative participatory study explored how powered mobility (PM), in the form of modified ride-on cars, impacts children with spinal muscular atrophy type 1 (SMA1) and their families. Here are ...